Following the success of the Early Intervention Pilot project which Brain Tumour Support ran with the neuro oncology team at Southmead Hospital Bristol, the National Lottery Community Fund have awarded a grant of £19,824 to enable Brain Tumour Support to scope rolling out a similar project in Wales.
In the Southmead pilot, patients were automatically referred to Brain Tumour Support for emotional and practical support at the point of diagnosis. The six-month pilot was a huge success, with 112 patients being directly referred, 88% saying it was useful to have support so soon after diagnosis and a resulting 50% decrease in emotional support calls to the Southmead CNS team.
The most recent funding will allow our support team to scope out the adaptation and implementation of the early intervention partnership approach, which will run alongside our current support service delivery for patients in Wales. The project will focus on gathering direct patient voice, clinician perspective, and stakeholder and community input to ensure we consider and plan the programme best suited to the Welsh healthcare systems and Welsh patients.
The project will run for 12 months, enabling us to plan our future support services for Wales, with solid evidence of how we can best meet the needs of brain tumour patients and their loved ones. We provide individualised, tailored packages of support, including specialist counselling, to address isolation, loneliness, anxiety, financial pressures, and the complex emotional and practical issues that a brain tumour diagnosis can bring.
Meet our Support Professional in Wales, Gavin Davies
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Tags: braintumoursupport, SupportMatters, TogetherWeAreStronger, Wales
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