21 May 2026
When someone is diagnosed with a brain tumour, they may be overwhelmed by the need to understand a new language. This article aims to provide a shortcut to that new language so that patients, caregivers, colleagues, employers, journalists, policymakers and…
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31 March 2026
At Brain Tumour Support, we have been closely following developments around Vorasidenib, a targeted therapy that has shown promise for people living with certain types of low-grade glioma. So we are delighted to share today’s final decision by the National…
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26 February 2026
When we tell people that brain tumours are the biggest cancer killer of the under 40s, their first reaction is often shock or disbelief. What’s the evidence for this and where do we get our figures from?
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13 January 2026
We know that many people in our community are eagerly anticipating NICE’s decision on NHS funding for Vorasidenib. Yesterday, 12 January, it was announced that the appraisal for the drug has been paused, at the request of the drug’s manufacturer,…
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19 October 2025
Liam Vincent-Kilbride was diagnosed with a grade 2 glioma, and following surgery in October 2024 was offered to be part of the Early Access Program, taking Vorasidenib. After 10 months on the drug, he shared his experience and reaction in…
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7 October 2025
Our Head of Support Services, Lucy Wilkinson, explains the significance to glioblastoma patients of a clinical trial planned for next year. A ground breaking gene therapy clinical trial for glioblastoma is expected to launch in early 2026, offering new hope…
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12 April 2025
In the Spring Budget 2025 the UK government announced a series of proposals designed to help get more people into work and cut the costs of social security benefits. Many of these plans are still in development, but if implemented…
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9 October 2024
In April this year, bestselling writer Sophie Kinsella, revealed that she has been undergoing treatment for brain cancer, having been diagnosed with a glioblastoma brain tumour in November 2022. Tomorrow sees the release of her latest book ‘What Does it…
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30 September 2024
Sammy was diagnosed with a brain tumour in 2016 and lives with the long-term management of both the physical and mental impact that the diagnosis has had on her life. Finding support and connection with others who are facing similar…
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22 February 2024
Long-time Brain Tumour Support fundraiser, Robin-Mark Schols is taking on the Tokyo Marathon this March.
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14 November 2023
Brain Tumour Support’s Chair of Trustees, Andrew Chater, stepped down from his role on the Board at the end of October. CEO, Tina Mitchell Skinner, shares her thoughts and pays tribute to a man who has supported the charity’s work…
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10 August 2023
Our volunteer ambassador Heather shared some thoughts for Volunteers Week on her own brain tumour experience over the past ten years.
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