Our campaigning and collaborations - Brain Tumour Support

Our campaigning priorities

1: EQUITY

Equity across the clinical and support pathway for all brain tumour types and grades.

2: YOUR VOICE

Ensuring the voice and perspectives of individuals affected by a brain tumour and their families are considered and raised at key opportunities with those in power to make change.

3: CARE FOR ALL

Recognition of equal need for support beyond the individual with the brain tumour. Non-medical support services for all those whose lives are impacted by a diagnosis are an essential part of the pathway and wrap-around care.

The importance of working together

We see collaborative work with fellow charities, like-minded organisations, groups and individuals as essential to achieve much-needed progress in brain tumour awareness, research, treatment and care. Whilst our top focus will always be our uniquely specialist support delivery, we consistently seek opportunities to be involved in advocacy and advisory capacities in many partnerships, collectives and campaigns. Our patient-led experience and understanding of the complex challenges that individuals with a brain tumour, and their families, face on a daily basis gives vital insight and is an essential voice in improving the lives of all those affected.

Key activities over the past year have included:

Regular meetings with the CEOs of other key charities in our sector, such as Brain Tumour Research, The Brain Tumour Charity and brainstrust, to work together for the benefit of the community.
Our work alongside other charities, researchers and government bodies, as key partners and funders of the Tessa Jowell Brain Cancer Mission (TJBCM), which is dedicated to improving treatment, care and research for brain cancer.
Collaborating with partner charities and our community to align evidence and coordinate advocacy to strengthen the case for innovative therapies seeking National Institute for Health and Care Excellence (NICE) approval, including Optune and Vorasidenib.
Attendance at the Sixth Biennial World Summit of Brain Tumour Patient Advocates, organised by the International Brain Tumour Alliance (IBTA) in Rome, November 2025.
Partnering with a multidisciplinary team of clinicians, patients and researchers bringing together clinical expertise, research innovation and lived experience to focus on the unmet needs of people living with a low grade brain tumour.
Contribution to the National Cancer Plan, published February 2026, with a submission drawing on direct insights from patients and families aiming to influence policy and ensure that brain tumours are recognised as a priority within the wider cancer strategy.
A new collaboration with the three other main UK brain tumour charities to review the use of data across our platforms. This joint working aims to ensure that information provided is accurate, aligned and up to date, and to help improve wider understanding of facts and terminology.
Using our social media platforms to share posts and information from fellow charities and those campaigning for better outcomes for everyone impacted by a brain tumour.
Attending the Brain Cancer Justice rally in March 2026, to support their Government petition calling for increased brain cancer funding and the right to try innovative treatments.

The fact you turn up and spend so much time talking with people is a real support to the community and shows how much you genuinely care.
Rally attendee

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