All NHS patients have the right to dignity, respect and privacy. It can sometimes be difficult to understand what you are entitled to, so here are some key rights that may be helpful to know.
You have the right to receive clear information about your care and treatment, including risks, benefits and alternatives, so you can make informed choices.
You have the right to request a second opinion about your diagnosis or treatment plan. If you are considering this, it may help to raise it as early as possible so your care is not delayed.
You may be asked to take part in research or a clinical trial. You have the right to say no, and your decision should not affect the quality of your care.
You are entitled to access your medical records if you wish to do so.
You have the right to be seen as close as possible to your appointment time. Delays can happen, but you should be given a clear explanation if your appointment is significantly delayed.
You are entitled to have your religious and cultural beliefs respected, including support with dietary needs, interpreters, privacy preferences, and visits from religious representatives where requested.
To find out more about how the NHS works and about local services, visit the NHS website.
If you need help raising a concern, asking questions, or resolving an issue, you can contact PALS (Patient Advice and Liaison Service). PALS provides confidential support for patients, carers and families and can help you:
You can find contact details for your local service here: Find your local PALS.
If you’re feeling unsure about appointments, decisions, or how to raise a concern, our Support Professionals can help you talk things through and consider your next steps.
01454 422 701 (Monday–Friday, 9am–5pm)
Our services are free and confidential. If it’s outside office hours, you can complete our request support form at any time.
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For many people affected by a brain tumour, the most difficult challenges aren’t always medical — they can be the hidden impact of navigating appointments, waiting, uncertainty and decisions.
This Brain Tumour Awareness Month, we’re sharing real experiences that highlight what life can feel like beyond treatment. That includes advocating for yourself, asking questions, seeking second opinions and coping with the emotional weight of waiting.
If any of this feels familiar, you are not alone. Explore Brain Tumour Awareness Month to read stories and find support.
Explore Brain Tumour Awareness Month
Ashley’s sudden diagnosis and need for immediate surgery were overwhelming. She talked to us about her experience and how having specialist support and counselling has helped both her and her partner keep positive as she continues through treatment. I was…
Read Ashley’s storyFollowing a seizure in 2024, Charles underwent brain surgery and treatment for a rare tumour. He is still living with its effects and ongoing monitoring. In September 2026, he(...)
Read Read moreFacing brain cancer and moving forward Life for Kash changed very quickly, following many months of unresolved symptoms and a gut feeling that something wasn’t right. In(...)
Read Read moreSupport for the whole family after a brain tumour diagnosis When Jane was diagnosed with a brain tumour in March 2025, her world changed in an instant. She had felt well, apar(...)
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5 October 2026
Kash Raju describes himself as an ‘average family man’, working hard, into fitness, and living a busy life with his wife and three young children. But life for him and his(...)
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2 October 2026
St Austell Charitable Trust recently awarded us a £3,000 grant for our support services in the South West. This generous donation will fund three in-person support groups in (...)
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30 September 2026
Members of Yate and District Bowls Club chose Brain Tumour Support as their club charity for 2026, raising £1,200 through fundraising and donations throughout the season. Thi(...)
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