Living with a brain tumour

Support for living with a brain tumour

Caring for yourself: understanding what to expect and how to navigate the journey

Brain Tumour Support provides free specialist support for anyone affected by a brain tumour, from the moment of diagnosis and for as long as support is needed, including support after bereavement.

We support patients, families, carers and loved ones who are navigating the day-to-day impact of a brain tumour. Our services include one-to-one support, support groups, online and telephone support, and specialist counselling, helping people find guidance and reassurance throughout their journey.

Adjusting to life with a brain tumour

You may experience many different emotions and changes after a brain tumour diagnosis. These resources offer guidance to help you understand your feelings, manage physical changes and support your emotional wellbeing as you adjust to life with a brain tumour.

Your feelings after diagnosis

A brain tumour diagnosis can bring many different emotions. Learn more about the feelings people often experience after diagnosis and how support can help you navigate this time.

Understanding your feelings

Understanding physical changes

Brain tumours and their treatment can sometimes affect how your body feels or functions. Learn more about common physical changes and ways to manage them.

Learn about physical changes

Understanding emotions and mental health

A brain tumour diagnosis can affect emotional wellbeing for both patients and those close to them. Discover ways to support your mental health and where to find help.

Support for mental health

Coping with life after a brain tumour diagnosis

Living with a brain tumour can bring physical, emotional and practical challenges. Small steps can help support your wellbeing and make everyday life feel more manageable.

Explore practical ways to reduce stress, support your body and create routines that help you rest and recover.

Relaxation and managing stress

Learning ways to manage stress can help you cope with the challenges of a brain tumour diagnosis. Discover simple relaxation techniques that may help you feel calmer and more in control.

Explore relaxation techniques

Exercise and nutrition

Gentle physical activity and balanced nutrition can help support your strength, energy and overall wellbeing while living with a brain tumour.

Supporting your body and energy

Creating a healthy sleep routine

Good-quality sleep helps the body rest and recover. Learn ways to improve your sleep routine and support better rest during treatment or recovery.

Improving your sleep routine

Hear from people in our community

Real experiences from people living with a brain tumour, and the families and carers who support them.

Charles’s story

Following a seizure in 2024, Charles underwent brain surgery and treatment for a rare tumour. He is still living with its effects and ongoing monitoring. In September 2026, he(...)

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Kash’s story

Facing brain cancer and moving forward Life for Kash changed very quickly, following many months of unresolved symptoms and a gut feeling that something wasn’t right. In(...)

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Jane’s family story

Support for the whole family after a brain tumour diagnosis When Jane was diagnosed with a brain tumour in March 2025, her world changed in an instant. She had felt well, apar(...)

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Talk to our support team

If you’re unsure where to begin, our Support Team is here to listen and help you explore the support available for you or someone close to you.

01454 422 701 (Monday – Friday, 9 am – 5 pm)

Email our support team

Our services are free and confidential. If you’d prefer, you can complete our request support form at any time and a member of the team will be in touch.

Get free support
Ali smile at the camera with a quote over the image talking about what the family needed following her mother's brain tumour diagnosis
Young red-haired woman in black and white striped top, seated in bedroom, thoughtful and looking slightly away from camera

Elena’s story

Elena was diagnosed with a brain tumour at nineteen, just as she was about to start university. She shares how that moment changed her life, the long-term impact of her diagnosis and why ongoing support continues to matter.

Read Elena’s story

Living with the hidden impact of a brain tumour diagnosis

A brain tumour diagnosis can affect far more than treatment and appointments. Many people tell us the emotional, practical and long-term impact is often unseen by others.

Living with a brain tumour can mean navigating changes to work, relationships, independence and mental health — often in ways that those around you don't fully see or understand.

If you recognise your own experience, or want to understand more about the support available at every stage, you are not alone.

Explore support for every stage
Brain Tumour Support square image featuring Andy smiling at the camera. The copy reads #SupportMatters - because you matter

Read the latest news

18 October 2026 18 October 2026

Reflections on a landmark day for the brain tumour community

Last week was a momentous one for the brain tumour community. It brought long-awaited Government commitments, a major report and recognition of progress within NHS teams.

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14 October 2026 14 October 2026

Pivotal announcements for the brain tumour community

People living with brain cancer will get a faster route from research to treatment, under four steps set out by the Prime Minister today.

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5 October 2026 5 October 2026

Young dad raising awareness of brain tumour symptoms as he fac(...)

Kash Raju describes himself as an ‘average family man’, working hard, into fitness, and living a busy life with his wife and three young children. But life for him and his(...)

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Living with a brain tumour can affect far more than treatment and appointments. The emotional, practical and long-term impact is often unseen, but no one should have to face it alone.