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Information and guidance after a brain tumour diagnosis

Practical information to help you feel more informed and in control

A brain tumour diagnosis can bring a flood of questions. You may be looking for practical guidance, trusted information, or simply reassurance that what you’re experiencing is normal.

Here you’ll find resources and advice covering everyday challenges, from work and travel to benefits, wellbeing and your rights within the NHS.

If you’re not sure where to start, explore the topics below or get in touch with our support team for personalised guidance.

Explore information and support options

Information booklets and downloads

Download trusted guides covering diagnosis, treatment, practical support and life beyond a brain tumour. Clear, reliable information you can access at any time.

Browse resources

External organisations and specialist support

Find trusted organisations offering additional advice, specialist services and wider support that may complement the help you receive from Brain Tumour Support.

Find external support

Meet your Support Team

Get to know the experienced Support Professionals and Welfare Benefits Advisers who provide personalised emotional and practical support across the UK.

Meet the team

Talk to our support team

If you’re unsure which information applies to your situation, our Support Professionals can guide you. We offer personalised emotional and practical support to help you navigate what feels overwhelming.

01454 422 701 (Monday–Friday, 9am–5pm)

Email our support team

Our services are free and confidential.

Get support
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Practical support for everyday challenges

Benefits and financial guidance

Understand what financial support, grants and welfare benefits may be available to you after a brain tumour diagnosis.

Explore benefits and finance advice

Health and wellbeing

Guidance on looking after your physical and emotional wellbeing, including exercise, nutrition and managing fatigue.

Support your wellbeing

Information and resources

Access trusted information and downloadable resources to help you feel informed and prepared at every stage of your journey.

Browse our resource library

Work and employment

Practical advice on your rights at work, reasonable adjustments and conversations with your employer.

Your rights at work

Travel and insurance

Information about travelling safely after diagnosis, including driving regulations and travel insurance considerations.

Travel guidance

Your rights in the NHS

Information about travelling safely after diagnosis, including driving regulations and travel insurance considerations.

Learn about your rights

The hidden impact of brain tumours

Many of the challenges people face after a brain tumour diagnosis aren’t always visible. Navigating benefits, work, travel, appointments and everyday decisions can feel overwhelming — especially alongside the emotional impact.

This Brain Tumour Awareness Month, we’re shining a light on the emotional and practical impact that continues long after treatment ends. Read real stories, explore guidance and discover support for life beyond diagnosis.

Explore Brain Tumour Awareness Month
Ali smile at the camera with a quote over the image talking about what the family needed following her mother's brain tumour diagnosis

Support for you and those around you

Beyond practical guidance, we offer dedicated emotional and personal support for anyone affected by a brain tumour, whether you are a patient, family member, friend or caregiver.

Support groups

Join safe, welcoming online and face-to-face groups where you can connect with others who understand and share experiences in a supportive environment.

Find a support group

Support for families and caregivers

Specialist emotional and practical support for those caring for or supporting someone with a brain tumour.

Support for those supporting others

One-to-one counselling

Confidential counselling to help you process emotions, manage uncertainty and navigate the impact of diagnosis.

Learn about counselling

Online peer support forum

Join our moderated Facebook Support Forum for compassionate peer support and shared understanding, available whenever you need it.

Join the Facebook Forum
Richard and Sue Warren sitting together on a sunny day.

Richard’s story

After two rounds of brain surgery and chemotherapy, Richard hit an all-time low and felt suicidal. But he says that attending one of our Support Groups as well as specialist support from our Brain Tumour Support counsellor saved his life.

Read Richard’s story

Personal stories of strength and resilience

Charles’s story

Following a seizure in 2024, Charles underwent brain surgery and treatment for a rare tumour. He is still living with its effects and ongoing monitoring. In September 2026, he(...)

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Kash’s story

Facing brain cancer and moving forward Life for Kash changed very quickly, following many months of unresolved symptoms and a gut feeling that something wasn’t right. In(...)

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Jane’s family story

Support for the whole family after a brain tumour diagnosis When Jane was diagnosed with a brain tumour in March 2025, her world changed in an instant. She had felt well, apar(...)

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Latest news from Brain Tumour Support

5 October 2026 5 October 2026

Young dad raising awareness of brain tumour symptoms as he fac(...)

Kash Raju describes himself as an ‘average family man’, working hard, into fitness, and living a busy life with his wife and three young children. But life for him and his(...)

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2 October 2026 2 October 2026

St Austell funds support in the South West

St Austell Charitable Trust recently awarded us a £3,000 grant for our support services in the South West. This generous donation will fund three in-person support groups in (...)

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30 September 2026 30 September 2026

Yate and District Bowls Club raise £1,200 for Brain Tumour Su(...)

Members of Yate and District Bowls Club chose Brain Tumour Support as their club charity for 2026, raising £1,200 through fundraising and donations throughout the season. Thi(...)

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