Media centre

Need a comment, case study or media asset?

You’re in the right place. Brain Tumour Support is a specialist charity dedicated to supporting everyone affected by a brain tumour, patients, families, carers and those who’ve been bereaved.

We work with journalists, broadcasters and content creators to provide expert comment, human stories and accurate information about the impact of brain tumours and the support available.

Every day, people across the UK receive a brain tumour diagnosis that changes everything. Behind every one of those diagnoses is a family whose life has just changed. We’re here to make sure they don’t face it alone — and we’re here to help you tell that story.

Brain tumours in numbers

  • Around 13,000 people in the UK are diagnosed with a primary brain tumour every year
  • Brain tumours are the biggest cancer killer of children and adults under 40 in the UK
  • Just 12.9% of adults diagnosed with brain cancer in England survive five years or more
  • Brain cancer reduces life expectancy by an average of 27 years
  • More than 5,400 people lose their lives to a brain tumour each year
  • Brain Tumour Support has been providing specialist support since 2003
  • Last year we supported 5,900 people affected by a brain tumour across the UK
  • 96% of our online community say being part of the group helps them feel less alone

Our statistics are drawn from a shared dataset agreed by the four leading brain tumour charities in the UK.

Read more about our data and sources
Elena has been supported by Brain Tumour Support and talks about being a young person with a brain tumour diagnosis. Image shows Elena talking to a person.

Media enquiries

For comment, interview requests, case studies or press releases, please contact our Communications team.

Bridget Dowty, Communications Lead

01454 414 355 (Monday – Friday, 9 am – 5 pm)

Email Bridget Dowty

We are closed on Saturdays, Sundays and Bank Holidays.

Download our logos

Our approved Brain Tumour Support logos are available to download for press and media use. Please contact Bridget Dowty if you need additional assets or photography.

Download our logos

Latest announcements

Our most recent press releases and media announcements. For older releases, see the archive below.

Four leading brain tumour charities unite on shared data

Date: 26 February 2026

Brain Tumour Support has joined forces with Brain Tumour Research, The Brain Tumour Charity and brainstrust to establish a shared dataset of key brain tumour statistics — ensuring that the information reaching patients, families, journalists and the public is accurate, consistent and up to date.

The four charities have agreed on core data that reflects the true scale and impact of brain tumours in the UK. Among the headline figures:

  • Around 13,000 people in the UK are diagnosed with a primary brain tumour every year
  • Brain tumours are the biggest cancer killer of children and adults under 40 in the UK
  • Just 12.9% of adults diagnosed with brain cancer in England survive five years or more
  • Brain cancer reduces life expectancy by an average of 27 years
  • More than 5,400 people lose their lives to a brain tumour each year

The collaboration addresses a longstanding challenge in the brain tumour sector — the wide variation in how statistics are reported and interpreted across different organisations. With more than 100 types of brain tumour classified by the World Health Organisation, inconsistencies in data have made it difficult to build a clear and unified picture of the condition’s impact.

By aligning on a shared framework, the four charities aim to strengthen advocacy, improve public understanding and ensure that people affected by brain tumours have access to reliable, consistent information at every stage of their journey.

For further information or comment, contact Bridget Dowty, Communications Lead.

Read the full data report

Previous announcements

Brain Tumour Support marked Brain Tumour Awareness Month 2026 by focusing on the hidden impact of brain tumours — the cognitive, emotional and practical challenges that are often invisible to others, including changes to memory, concentration and behaviour, persistent fatigue, emotional distress, and the lasting impact on family life and employment.

Throughout March, the charity amplified the voices of patients, carers and families to improve understanding and reduce isolation, encouraging more informed conversations in healthcare settings, workplaces, schools and communities.

Every 40 minutes, someone in the UK is diagnosed with a brain tumour. Brain Tumour Support provides emotional and practical support from the point of diagnosis, for as long as it is needed.

For further information or comment, contact Bridget Dowty, Communications Lead.

Find out more about BTAM

Brain Tumour Support launched its 2025 Christmas Appeal with the story of Alice, aged 10, and her parents Jane and Simon — facing their first Christmas since Jane’s diagnosis of an inoperable brain tumour. The appeal highlighted the urgent need for emotional and practical support for families during the festive season, including specialist counselling for children carrying the
hidden weight of a parent’s diagnosis.

With demand for support continuing to rise, the charity called on individuals, workplaces and communities to donate so that families across the UK do not face a brain tumour diagnosis alone.

Every 40 minutes, someone in the UK hears the words: “You have a brain tumour.” Brain Tumour Support provides dedicated help from the moment of diagnosis and for as long as it is needed.

For further information or comment, contact Bridget Dowty, Communications Lead.

Read about our Christmas Appeal

Stories we can help you tell

We can provide expert comment, case studies and spokespeople for a wide range of stories. Here are some of the angles we’re currently working with.

Awareness and support

  • The hidden impact of brain tumours: cognitive changes, fatigue, personality shifts and memory loss. Under-reported and compelling for health and features desks.
  • Children affected by a parent’s diagnosis: how brain tumours affect family life, children’s mental health and the specialist support available.
  • The diagnosis moment: human interest stories around what happens in the hours and days after diagnosis, and the support that makes the difference.
  • Bereavement after a brain tumour: a distinct and under-covered form of grief, shaped by the cognitive and personality changes that often precede death.
  • Vorasidenib NICE approval: a landmark treatment approval for low-grade glioma. We can provide a patient perspective and comment.

Fundraising and community

  • Walk for Support 2026: two focus days in June. A strong local and regional media hook with personal stories from walkers across the UK.
  • London Marathon 2027: charity places available. We can connect you with runners with personal connections to brain tumours.
  • Workplace fundraising: our Charity of the Year partnership with Alliance is a ready-made angle for business and regional press.
  • Community fundraising: local stories like cake sales, sponsored challenges and community events. We can provide quotes, images and local contacts.

Read our latest news

29 July 2026 29 July 2026

Joint charity letter to Secretary of State for Health and Soci(...)

Brain tumour charities call for progress on research, treatment and support This month, we joined five other key organisations dedicated to helping the brain tumour community (...)

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16 July 2026 16 July 2026

Gleeds Energy steps up for support

The South West team at Gleeds Energy Limited have found an inventive way to support Brain Tumour Support while encouraging colleagues to get active and boost their wellbeing. (...)

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16 July 2026 16 July 2026

bClear Communications’ grant helps fund support

We recently received a grant from bClear Communications to help fund one of our Men’s Support Groups. This online group, run by a male Support Professional, gives patien(...)

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