LastSay logo beside the words “Your wishes, at your own pace. A gentle way to plan and record what matters to you.”

Planning ahead with LastSay

Your wishes, at your own pace

Thinking about the future can bring up difficult feelings, particularly when you or someone close to you is living with a brain tumour.

You may want to organise important information, record your wishes or begin a conversation with the people who matter to you. You don’t have to tackle everything at once.

LastSay is an online planning platform designed to help you organise important information and record your wishes at your own pace.

Through our partnership with LastSay, Brain Tumour Support clients can access the platform free of charge.

What can LastSay help with?

LastSay provides a place to organise important information and think about what matters to you, including:

  • Your wishes about future care.
  • Your funeral preferences.
  • Important documents and details about your assets.
  • Personal stories and memories you would like to preserve.

You can explore the areas that feel relevant to you and answer only what you feel ready to.

Take a first step when you feel ready

You might begin by recording one preference or gathering a few important details. You can also choose to talk things through with someone you trust.

You don’t have to tackle everything at once. Explore LastSay at a pace that feels right for you, with free access for Brain Tumour Support clients.

This link takes you to LastSay’s website, where you can read about its service, terms and privacy information.

Explore LastSay

When life changes, practical support matters

The impact of a brain tumour is often felt in everyday life, not just in appointments and treatment. Many people face hidden practical pressures — from finances and benefits to work changes, travel concerns and paperwork that feels impossible when you're already overwhelmed.

During Brain Tumour Awareness Month this year, we shared real stories that highlighted these everyday realities and the support that can help. Those stories are still here, and the support they point to is available all year round.

If you're dealing with practical challenges, you don't have to work it out alone.

See the support available
Ali smile at the camera with a quote over the image talking about what the family needed following her mother's brain tumour diagnosis

Richard’s inspiring journey

Meet Richard, whose resilience and determination transformed his life after a challenging battle with a brain tumour diagnosis. Discover how our support groups and counselling services played a pivotal role in his recovery journey.

My counsellor saved my life – it’s as simple as that. She just said the right things at the right time. I still have dark moments, but they pass. My family and my Support Group keep me going.

Richard and Sue Warren sitting together on a sunny day.

Richard’s story

After two rounds of brain surgery and chemotherapy, Richard hit an all-time low and felt suicidal. But he says that attending one of our Support Groups as well as specialist support from our Brain Tumour Support counsellor saved his life.

Read Richard’s story