Brain Tumour Support urges government action in national cancer plan

29 April 2025 | Campaigning and research, News, Support

Brain Tumour Support is calling on the UK Government to ensure that the needs of brain tumour patients and their families are fully addressed in the upcoming national cancer plan for England.

Despite being one of the most complex and life-altering forms of cancer, brain tumour care across the UK remains inconsistent and under-resourced. Brain Tumour Support is urging immediate action to tackle longstanding inequalities and improve outcomes for patients.

Key recommendations include:

• Awareness and early diagnosis: A national campaign is needed to help frontline healthcare professionals recognise brain tumour symptoms early and refer patients promptly.
• Faster access to diagnosis: Enable GPs to directly access imaging tools like CT scans to reduce delays.
• Workforce investment: Establish minimum staffing standards for cancer multidisciplinary teams (MDTs) to support hospitals in securing adequate resources.
• Equity in support: Guarantee timely access to psychological care, neuro-rehabilitation, and mental health services from diagnosis through survivorship.
• Access to genomic testing: Ensure all eligible patients can benefit from whole genome sequencing and precision medicine, as 85% currently miss out.
• Inclusion of low grade brain tumours: Recognise all brain tumours, including lower grade types, in national cancer strategies to avoid exclusion from crucial care and policies.

Brain tumour patients and survivors often endure lasting physical, emotional, and cognitive impacts. However, access to essential services varies drastically by region. While some areas offer specialist support, others depend solely on GP referrals. Families and carers, too, face significant unmet needs.

Brain Tumour Support highlights the crucial role of third-sector organisations and hospices in filling these care gaps, often working closely with the NHS. Expanded government funding would enable these organisations to scale support and ensure holistic, co-ordinated care.

Read about the national cancer plan call for evidence on the government website here.