News - Campaigning and research

25 September 2026 25 September 2026

Pilot of rapid diagnostic test reducing uncertainty for NHS patients

Encouraging and hopeful developments in brain tumour diagnosis Rapid genomic testing is being piloted in five NHS hospitals across England. This technology will speed up the process of analysing and identifying the precise type of brain tumour that a patient…

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24 August 2026 24 August 2026

Brain tumour community demands change

The strength of a community coming together Lucy Wilkinson, Head of Support Services at Brain Tumour Support, reflects on the impact of recent national news coverage about brain tumours, the hard work which continues to go on across the brain…

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29 July 2026 29 July 2026

Joint charity letter to Secretary of State for Health and Social Care

Brain tumour charities call for progress on research, treatment and support This month, we joined five other key organisations dedicated to helping the brain tumour community in writing a joint letter to the new Secretary of State for Health and…

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2 July 2026 2 July 2026

Brain Tumour Support showcases early intervention work at BNOS 2026

Our Head of Support Services and CEO shared the importance of timely, personalised support for people affected by a brain tumour. Brain Tumour Support was delighted to attend BNOS 2026 in Birmingham this week, joining healthcare professionals, researchers, charities and…

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16 June 2026 16 June 2026

MPs speak with passion at Brain Cancer Justice petition debate

Brain Tumour Support has welcomed the powerful and emotive discussions that took place in Parliament yesterday (Monday 15 June), as the urgent need for greater investment in brain cancer research and treatment was debated. Securing this debate was a notable…

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21 May 2026 21 May 2026

Breaking down brain tumour terminology

When someone is diagnosed with a brain tumour, they may be overwhelmed by the need to understand a new language. This article aims to provide a shortcut to that new language so that patients, caregivers, colleagues, employers, journalists, policymakers and…

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31 March 2026 31 March 2026

Vorasidenib gains approval from NICE

At Brain Tumour Support, we have been closely following developments around Vorasidenib, a targeted therapy that has shown promise for people living with certain types of low-grade glioma. So we are delighted to share today’s final decision by the National…

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10 March 2026 10 March 2026

Vorasidenib approval gives new hope for low-grade brain tumour patients in Scotland

We are delighted to share that the Scottish Medicines Consortium (SMC) has approved Vorasidenib (Voranigo) for patients aged 12 and over with IDH-mutant low-grade gliomas, including grade 2 astrocytomas and oligodendrogliomas. This marks an important milestone for patients, families and…

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28 February 2026 28 February 2026

The Rare Cancers Bill is becoming law

This month marks a major milestone in the fight against rare cancers (those affecting fewer than 1 in 2000 people), including brain tumours, as the Rare Cancers Bill has successfully passed its Third Reading in the House of Lords and…

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26 February 2026 26 February 2026

Brain tumour data: Statistics that shock, but can also bring hope

When we tell people that brain tumours are the biggest cancer killer of the under 40s, their first reaction is often shock or disbelief. What’s the evidence for this and where do we get our figures from?

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13 January 2026 13 January 2026

An update on Vorasidenib

We know that many people in our community are eagerly anticipating NICE’s decision on NHS funding for Vorasidenib. Yesterday, 12 January, it was announced that the appraisal for the drug has been paused, at the request of the drug’s manufacturer,…

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19 December 2025 19 December 2025

NIHR funding announced to establish the National Brain Tumour Consortium

Hope for our community as NIHR funding is invested to establish a new Brain Tumour Research Consortium The National Institute for Health and Care Research (NIHR) has today announced key funding which is a significant move towards better treatments and…

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