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Talking about your brain tumour

How to tell people about your brain tumour diagnosis

Deciding who to tell, and how to tell them, can feel overwhelming. Sharing news of a brain tumour diagnosis with family, friends, or colleagues is often one of the most difficult conversations you may face.

You might be worrying about how people will react, how the news will affect them, or what questions they may ask. It’s completely normal to feel a mix of emotions, including anxiety, sadness, anger, fear or even guilt.

Some people find that talking brings a sense of relief, helping them feel less alone. There is no right or wrong way to do this. Choose what feels manageable for you, and be gentle with yourself as you take each step.

The guidance below offers practical suggestions, as well as information about how Brain Tumour Support can help.

Take your time

  • Take your time. Think about what you want to say. It’s okay to say “I don’t know” and to have simple facts to hand, such as the name of your tumour, your treatment plan or who is in your clinical team.
  • Introduce the subject gradually. You might begin with, “I need to tell you something difficult,” and share information in small amounts. The person you’re telling may also need time to process what you’ve said. Silences are okay.
  • Choose the way that feels easiest for you. Face-to-face conversations work for some people; others prefer phone, email or text.
  • Focus on what is worrying you most. You might say, “I’m worried about how this will affect work,” or “I’m concerned about how you’ll feel.”
  • Ask someone to help if you need to. A trusted friend, family member or colleague can share the news on your behalf.
  • Look for additional support. Many people want to help, both practically and emotionally, even if they’re unsure how at first.

Talk to our support team

If you’d like support preparing for these conversations, our Support Professionals can help you think through what to say, when to say it, and how to approach discussions with family, friends or your employer.

01454 422 701 (Monday–Friday, 9am–5pm)

Email our support team

Our services are free and confidential. You can also complete our request support form at any time.

Get free support
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Talking about a brain tumour diagnosis

Talking to children and young people

Explaining a brain tumour diagnosis to children or young people can feel overwhelming. Our guidance offers practical advice to help you have honest, age-appropriate conversations and support them emotionally.

Talking to your child about your diagnosis

Talking to your employer about your diagnosis

Sharing your diagnosis at work can help your employer understand what support or adjustments you may need. Read guidance on approaching conversations about work, wellbeing and practical support.

Telling your employer about your diagnosis

Find the right support for you

Support is available for anyone affected by a brain tumour, including patients, families, friends and carers. Explore the different ways you can connect, talk and access support.

Support groups

Online and face-to-face support groups offering a safe space to share experiences and connect with others who understand.

Find a support groups

Support for families and caregivers

Emotional and practical support for those supporting someone they love through diagnosis, treatment and beyond.

Support for families and caregivers

One-to-one counselling

Confidential one-to-one counselling to help patients, families and carers process emotions and navigate uncertainty.

Learn about counselling

Online peer support forum

Join our moderated Facebook Support Forum for peer support, shared experiences and understanding at any time of day.

Join the Facebook Forum

Practical and informational support

Alongside our emotional support services, we provide practical guidance to help you manage everyday challenges that can arise after a brain tumour diagnosis.

Benefits and finances

Specialist advice to help you understand your entitlements, navigate welfare benefits and reduce financial pressure during an already difficult time.

Benefits and finance advice

Health and wellbeing

Information and guidance to help you look after your physical and emotional wellbeing during treatment and recovery.

Support for your wellbeing

Information and resources

Download trusted guides and booklets covering diagnosis, treatment, practical support and life beyond a brain tumour.

Browse resources

Work and employment

Guidance on your rights at work, workplace adjustments and conversations with your employer after diagnosis.

Your rights at work

Travel and insurance

Practical information about travelling after diagnosis, including insurance considerations and medical travel guidance.

Travel guidance

Your rights in the NHS

Understand your rights as a patient, including access to treatment, second opinions and support within NHS services.

Learn about your rights
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