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Information and guidance after a brain tumour diagnosis

Practical information to help you feel more informed and in control

A brain tumour diagnosis can bring a flood of questions. You may be looking for practical guidance, trusted information, or simply reassurance that what you’re experiencing is normal.

Here you’ll find resources and advice covering everyday challenges, from work and travel to benefits, wellbeing and your rights within the NHS.

If you’re not sure where to start, explore the topics below or get in touch with our support team for personalised guidance.

Explore information and support options

Information booklets and downloads

Download trusted guides covering diagnosis, treatment, practical support and life beyond a brain tumour. Clear, reliable information you can access at any time.

Browse resources

External organisations and specialist support

Find trusted organisations offering additional advice, specialist services and wider support that may complement the help you receive from Brain Tumour Support.

Find external support

Meet your Support Team

Get to know the experienced Support Professionals and Welfare Benefits Advisers who provide personalised emotional and practical support across the UK.

Meet the team

Talk to our support team

If you’re unsure which information applies to your situation, our Support Professionals can guide you. We offer personalised emotional and practical support to help you navigate what feels overwhelming.

01454 422 701 (Monday–Friday, 9am–5pm)

Email our support team

Our services are free and confidential.

Get support
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Practical support for everyday challenges

Benefits and financial guidance

Understand what financial support, grants and welfare benefits may be available to you after a brain tumour diagnosis.

Explore benefits and finance advice

Health and wellbeing

Guidance on looking after your physical and emotional wellbeing, including exercise, nutrition and managing fatigue.

Support your wellbeing

Information and resources

Access trusted information and downloadable resources to help you feel informed and prepared at every stage of your journey.

Browse our resource library

Work and employment

Practical advice on your rights at work, reasonable adjustments and conversations with your employer.

Your rights at work

Travel and insurance

Information about travelling safely after diagnosis, including driving regulations and travel insurance considerations.

Travel guidance

Your rights in the NHS

Information about travelling safely after diagnosis, including driving regulations and travel insurance considerations.

Learn about your rights

The hidden impact of brain tumours

Many of the challenges people face after a brain tumour diagnosis aren’t always visible. Navigating benefits, work, travel, appointments and everyday decisions can feel overwhelming — especially alongside the emotional impact.

This Brain Tumour Awareness Month, we’re shining a light on the emotional and practical impact that continues long after treatment ends. Read real stories, explore guidance and discover support for life beyond diagnosis.

Explore Brain Tumour Awareness Month
Ali smile at the camera with a quote over the image talking about what the family needed following her mother's brain tumour diagnosis

Support for you and those around you

Beyond practical guidance, we offer dedicated emotional and personal support for anyone affected by a brain tumour, whether you are a patient, family member, friend or caregiver.

Support groups

Join safe, welcoming online and face-to-face groups where you can connect with others who understand and share experiences in a supportive environment.

Find a support group

Support for families and caregivers

Specialist emotional and practical support for those caring for or supporting someone with a brain tumour.

Support for those supporting others

One-to-one counselling

Confidential counselling to help you process emotions, manage uncertainty and navigate the impact of diagnosis.

Learn about counselling

Online peer support forum

Join our moderated Facebook Support Forum for compassionate peer support and shared understanding, available whenever you need it.

Join the Facebook Forum
Richard and Sue Warren sitting together on a sunny day.

Richard’s story

After two rounds of brain surgery and chemotherapy, Richard hit an all-time low and felt suicidal. But he says that attending one of our Support Groups as well as specialist support from our Brain Tumour Support counsellor saved his life.

Read Richard’s story

Personal stories of strength and resilience

Jane, Simon and Alice’s story

Support for the whole family after a brain tumour diagnosis When Jane was diagnosed with a brain tumour in March 2025, her world changed in an instant. She had felt well, apar(...)

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Elaine’s story

After being diagnosed with a high grade brain tumour, Elaine faced treatment, family worries and major life changes. With support from Brain Tumour Support, she found space to(...)

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Robert’s story

Robert’s story: finding hope again on the waves From childhood, Robert’s passion was surfing. As a competitive rower too, he had always been fit, active and happiest when (...)

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Latest news from Brain Tumour Support

29 July 2026 29 July 2026

Joint charity letter to Secretary of State for Health and Soci(...)

Brain tumour charities call for progress on research, treatment and support This month, we joined five other key organisations dedicated to helping the brain tumour community (...)

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16 July 2026 16 July 2026

Gleeds Energy steps up for support

The South West team at Gleeds Energy Limited have found an inventive way to support Brain Tumour Support while encouraging colleagues to get active and boost their wellbeing. (...)

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16 July 2026 16 July 2026

bClear Communications’ grant helps fund support

We recently received a grant from bClear Communications to help fund one of our Men’s Support Groups. This online group, run by a male Support Professional, gives patien(...)

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