Stories - Patient stories

11 September 2023 11 September 2023

Helen’s story

How our Support Group helps Helen find her ‘new normal When Helen was diagnosed with a grade one meningioma, she was in too much shock to read all the information and support leaflets she was given. It was only months…

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11 September 2023 11 September 2023

Phil’s story

Phil is 37 and lives in London with his wife and daughter. On his daughter’s first day of school, Phil went to hospital for brain surgery.

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11 September 2023 11 September 2023

Jenny’s story

When Jenny was involved in a nasty car accident she had to go for an MRI scan on her neck. She had also damaged her knee quite badly and was concerned about that. But, after the scan, instead of being told about the severity of her injuries, she received some other news she was not expecting. She had a brain tumour.

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11 September 2023 11 September 2023

Nicole’s story

My husband and I have attended our local Brain Tumour Support Group since Keith was diagnosed with his inoperable metastatic brain tumour. He died in the summer and I have continued to attend as I find the support incredible.

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11 September 2023 11 September 2023

Julie’s story

Julie was an inspiration to many. After being diagnosed with a brain tumour, she carried on with her many sporting challenges and fundraising. Julie sadly passed away in February 2019 but her spirit, quiet determination and generosity to others will never be forgotten, and here she reveals how a counsellor from Brain Tumour Support helped her along the way.

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11 September 2023 11 September 2023

Arvin’s story

A serious car accident changed Arvin’s life forever. But it wasn’t the injuries from the accident that did it – they were minor. It was the MRI scan that he had as a precaution.

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11 September 2023 11 September 2023

Konnie’s story

In 2016, Konnie went for an eye test at her local opticians because she thought she might need stronger lenses. But the optician noticed a swelling behind her eye and before she knew it, she was having an operation to remove a tumour.

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11 September 2023 11 September 2023

Jane’s story

Jane had a brain tumour. A meningioma, growing very close to her carotid artery.

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11 September 2023 11 September 2023

Freyja’s story

Freyja found her local Brain Tumour Support Group by accident. At the age of just 28, she had lost her husband to a rare form of abdominal cancer and less than a year later was diagnosed with a brain tumour….

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11 September 2023 11 September 2023

Karen and Lucy’s story

Meeting Karen gave me the hope and confidence to face radical brain surgery,” said Lucy. “And it is very comforting to know that the Brain Tumour Support Group is there for long-term support. They are like another family.”

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11 September 2023 11 September 2023

Nunzio’s story

“She looked after me during my cancer, now I am her full-time carer,” said Nunzio. “The brain tumour has robbed her of her speech and of our plans for the future. She bought herself an Audi TT before her diagnosis but has never been able to drive it.”

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11 September 2023 11 September 2023

Paul’s story

Brain Tumour Support, along with my family, have been there for support and advice all the way. With the help, support and expertise of all the team, including the NHS, I am still on this side of the daisies.

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