Stories - Patient stories

22 November 2023 22 November 2023

Chris’ Story

Our Family and Friends Support Group is one of our most popular services, running twice a month on Zoom, with support professionals Amy and Kirsten. We asked member, Chris to share his experience of being a part of the group,…

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6 October 2023 6 October 2023

Kieran’s story

Kieran was just 17 and starting his studies at college when he was diagnosed with a pineal germinoma brain tumour. The diagnosis changed his life. I was at college studying a B-Tec National Diploma in public services,  as from 10…

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12 September 2023 12 September 2023

Rachel’s story

Rachel was diagnosed in 2014 I am a Special Educational Needs PE teacher who lives in Wiltshire. I also work for a national organisation called the Youth Sport Trust, giving children with a disability as many sporting opportunities as possible…

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11 September 2023 11 September 2023

Helen’s story

How our Support Group helps Helen find her ‘new normal When Helen was diagnosed with a grade one meningioma, she was in too much shock to read all the information and support leaflets she was given. It was only months…

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11 September 2023 11 September 2023

Phil’s story

Phil is 37 and lives in London with his wife and daughter. On his daughter’s first day of school, Phil went to hospital for brain surgery.

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11 September 2023 11 September 2023

Jenny’s story

When Jenny was involved in a nasty car accident she had to go for an MRI scan on her neck. She had also damaged her knee quite badly and was concerned about that. But, after the scan, instead of being told about the severity of her injuries, she received some other news she was not expecting. She had a brain tumour.

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11 September 2023 11 September 2023

Nicole’s story

My husband and I have attended our local Brain Tumour Support Group since Keith was diagnosed with his inoperable metastatic brain tumour. He died in the summer and I have continued to attend as I find the support incredible.

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11 September 2023 11 September 2023

Julie’s story

Julie was an inspiration to many. After being diagnosed with a brain tumour, she carried on with her many sporting challenges and fundraising. Julie sadly passed away in February 2019 but her spirit, quiet determination and generosity to others will never be forgotten, and here she reveals how a counsellor from Brain Tumour Support helped her along the way.

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11 September 2023 11 September 2023

Arvin’s story

A serious car accident changed Arvin’s life forever. But it wasn’t the injuries from the accident that did it – they were minor. It was the MRI scan that he had as a precaution.

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11 September 2023 11 September 2023

Konnie’s story

In 2016, Konnie went for an eye test at her local opticians because she thought she might need stronger lenses. But the optician noticed a swelling behind her eye and before she knew it, she was having an operation to remove a tumour.

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11 September 2023 11 September 2023

Jane’s story

Jane had a brain tumour. A meningioma, growing very close to her carotid artery.

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11 September 2023 11 September 2023

Freyja’s story

Freyja found her local Brain Tumour Support Group by accident. At the age of just 28, she had lost her husband to a rare form of abdominal cancer and less than a year later was diagnosed with a brain tumour….

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