Stories - Patient stories

4 May 2024 4 May 2024

Debbie’s story

Debbie’s family had already faced one tragic loss to a brain tumour, and then in December 2023 her mum was also diagnosed with a glioblastoma. Debbie shares her family’s story. I live in Birmingham with my husband, Nick and our…

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3 May 2024 3 May 2024

David’s story

After David Bentley was diagnosed with a brain tumour, his friend and colleague, Sarah Riley, signed up for a running challenge to support him in his fight and raise funds for Brain Tumour Support. Sadly, David passed away just eight…

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30 April 2024 30 April 2024

Shaun’s story

After suffering a seizure which was initially thought to be caused by a stroke, Shaun was diagnosed with an oligodendroglioma brain tumour. He talks about his experience, and how support around him keeps him positive. I am Shaun, a 52…

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10 April 2024 10 April 2024

Andy’s story

Andy Downes served as a firefighter for 16 years, and his daughters Izzy and Georgia work as nurses at Southmead Hospital, so challenge was often part of their daily life. But after Andy was diagnosed with a brain tumour, they…

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27 March 2024 27 March 2024

Daniel’s story

Daniel is in his 20’s and has had a brain tumour since birth. It has affected his life, but he doesn’t let it stop him living his life. He found our support services through joining the Brain Tumour Support Forum on Facebook, and now he wants to give some support back to help others.

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6 March 2024 6 March 2024

Carly’s story

Life was good for Carly. She loved her job, had recently married her childhood sweetheart Kris, and just celebrated her 30th birthday. What she didn’t know was that she was living with a large brain tumour. Carly told us how…

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29 February 2024 29 February 2024

Ali’s story

Ali’s mum, Sylvia, was vibrant, full of life and bursting with energy belying her 79 years. Her family imagined they would enjoy many more together, until a shocking brain tumour diagnosis meant that those years became weeks. Ali told us…

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21 January 2024 21 January 2024

Polly and Andy’s story

Life changed overnight for Polly and Andy with a brain tumour diagnosis which took away Andy’s active and healthy lifestyle and meant Polly became his carer. Polly generously shared their story to help others facing a similar experience. Our family …

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13 December 2023 13 December 2023

Lyn and Teresa’s story

Lyn and daughter Teresa share their story of how Brain Tumour Support has changed their lives. My daughter, Teresa, was a healthy, happy 16-year-old who, when not in school, enjoyed spending time with her friends and family. In 1987 she…

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27 November 2023 27 November 2023

Moya and Mike’s Story

Moya and Mike shared their story to help others in a similar situation, and to encourage support for our vital services. In late May 2022, Mike started getting symptoms of brain fog, forgetfulness, total exhaustion, and feeling more emotional. He…

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22 November 2023 22 November 2023

Chris’ Story

Our Family and Friends Support Group is one of our most popular services, running twice a month on Zoom, with support professionals Amy and Kirsten. We asked member, Chris to share his experience of being a part of the group,…

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6 October 2023 6 October 2023

Kieran’s story

Kieran was just 17 and starting his studies at college when he was diagnosed with a pineal germinoma brain tumour. The diagnosis changed his life. I was at college studying a B-Tec National Diploma in public services,  as from 10…

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