This statement is provided to demonstrate that Brain Tumour Support is legally complying with the requirements of the new EU General Data Protection Regulation (GDPR) which came into force in May 2018.
As a charity that receives no government funding, we rely entirely on the kindness and generosity of our valued supporters. We are committed to keeping our supporters’ data safe and secure and do not share the information provided.
This policy is designed to help inform you of our data processing practices, enabling you to become more in control of how your personal data is being used and stored by us.
How do we collect your information and why?
Our processing of data is governed by legitimate interests. We will hold data in order to support you if you need us, and to inform you of the work we are doing and how you can support others.
We will obtain personal information from you when you enquire about our activities, register with us, fundraise for us, shop with us, make a donation to us or otherwise provide us with your information.
The types of personal information collected may include
- Your name, postal address, telephone number and email address (if provided we may hold your social media account/profile, such as Facebook, LinkedIn and Twitter)
- Your payment information e.g. the amount you choose to donate or have fundraised and gift aid declaration if you choose to gift aid
- Details of your interests and preferences (such as campaigns, the ways you support us or the types of hobbies you enjoy)
If you are being supported by us we will collect the following information
- Name or tumour type and grade
- Date of diagnosis
- Hospitals attended for treatment
- Relevant medical professionals
- Treatment received
- Treatment planned
- Most significant symptoms and side effects
- GP name and practice
- Friend and/or family contact information, which could be used by a Support Professional if they felt there was a safeguarding concern. By giving us this data you consent to us doing this on your behalf.
This information will never be shared outside of the charity.
How we use your information
- To respond to communications sent to us, either via email, letter, telephone, text, social media or in any other way
- For administrative purposes related to donations, fulfilling orders for goods or services, information or content you provide, and internal record keeping.
- To invite you to participate in surveys or in our own internal research and analysis
- For marketing purposes where you have agreed to this, such as e-newsletter or mailings
- To provide you with information about our activities, both for support services and fundraising
- To personalise our communications to you ensuring they are meaningful and relevant
- To prevent or detect fraud or abuses of our websites and enable third parties to carry out technical, logistical or other functions on our behalf
To use IP addresses to locate users and monitor the number of online visits from other counties/countries
- To help us improve the content and offerings on our website in order to meet the needs of our supporters, by using interests and preferences data
- Conducting research on the demographics, interests and behaviour of our supporters to enable a better understanding of your requirements. This allows the charity to identify areas of improvement in providing our services and to make communications as relevant as possible.
- Making a decision on the basis of an amount given and the method of giving enables us to personalise communications.
- We will only use your personal information for direct marketing purposes if we are permitted to do so by law or if we have your consent.
Update your communication preferences
You can update your communication preferences with us in writing, email or telephone using the following information:
Brain Tumour Support, 7a St Mary Street, Thornbury, South Gloucestershire, BS35 2AB, email us or telephone 01454 414 355.
Sharing your information
We will only share your information if
- We are legally required to do so, e.g. by a law enforcement agency legitimately exercising a power or if compelled by an order of the Court
- We believe it is necessary to protect or defend our rights, property or the personal safety of our people or visitors to our premises or websites
- We are working with our carefully selected service providers to help process communications, donations or otherwise help manage a relationship with us
- We are submitting your Gift Aid data to HMRC so that we can reclaim Gift Aid on your donation(s)
- We submit data outside of the EEA, to the US. This is very limited and we will always ensure we only use carefully selected partners who comply with agreed Standard Contractual Clauses
- We will not share your information with any other organisations for marketing, commercial or promotional purposes.
Storing your information
We take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is used. We have security measures in place to attempt to protect against the loss, misuse and alteration of personal data under our control.
Do we use website cookies?
Yes, we use cookies to provide accurate monitoring reports to help us understand our users’ interests and preferences, therefore ensuring that our website is as user-friendly as possible.
To find out more about how websites utilise cookies by visiting the All About Cookies website.
Your rights
By providing us with your personal data, you consent to the collection and use of any information you provide in accordance with the above purposes and this privacy statement. You have the right to ask for a copy of the information we hold about you and to have any inaccuracies in your information corrected.
If you want to exercise these rights or update your personal details, please contact us at Brain Tumour Support, 7a St Mary Street, Thornbury, South Gloucestershire, BS35 2AB or email us or telephone us at 01454 414 355.
We reserve the right to amend this privacy statement. If we do so, we will update this page and the changes will apply from the time we post them.
We include an opt-out statement in all our communications with you so you are always in control of what you receive from us. We only want to send you communications that you want to receive or support you in a way that you find useful.
Please allow a 10-day period for any changes to be processed.
Policy updated: 8 February 2023
