Lisa’s story
In 2006, at just 26 years old, Lisa’s life changed forever. She was diagnosed with an inoperable meningioma brain tumour – a moment that marked the beginning of a long and complex journey. Here we tell Lisa’s story and how Brain Tumour Support has helped her navigate a complex set of challenges with her young family.
Her first treatment, gamma knife radiotherapy, didn’t work. Years later, doctors performed a debulking surgery, but less than 5% of the tumour could be removed. The surgery left Lisa unable to walk, and doctors told her she might never walk again.
But Lisa defied the odds.
Not only did she regain mobility, but her tumour remained stable for nearly a decade. She was also told she could never have children due to the tumour’s progesterone receptiveness – yet today, she’s a proud mum to her miracle daughter, Ruby, now nine years old.
In 2024, Lisa received devastating news: her tumour had started growing again, likely linked to perimenopause. The growth had been slow but steady since 2020. She is now being closely monitored. Many of the emotions and fears from that initial diagnosis have returned.
“When I was first diagnosed, I wasn’t offered any counselling or guidance. It was overwhelming and lonely. And when I learned my tumour was growing again, I faced a whole new set of emotional challenges — not just for me, but for Ruby too.”
That’s when Brain Tumour Support stepped in.
Over the past six months, Lisa has been receiving counselling from Jane, one of the charity’s specialist counsellors. The support has been life-changing.
“My counsellor Jane has been absolutely invaluable. It’s been a safe space to talk, with someone who truly understands. It’s transformed my mindset and my relationship with Ruby.”
Brain Tumour Support understands the impact a brain tumour diagnosis has on not just the patient, but their family and friends. Our Family First programme is a lifeline to many families. Every family has their own set of circumstances, and the support they need will be unique to them. Our programme allows us to create a package of support that is bespoke to the family and its members. Learn more about our support services here
Turning diagnosis into determination
Lisa’s experience has fuelled her passion for advocacy. She’s been raising awareness of brain tumours ever since her diagnosis — and in 2024, she launched Influential Stars, a platform connecting creators with UK charities to drive meaningful change. Learn more about Lisa’s journey and her mission.
Brain tumours can affect any one of us, irrespective of age, lifestyle or general health, and it is estimated that over 100,000 people in the UK are living with a brain tumour. When faced with this shocking diagnosis, the right support to help navigate the path ahead is vital.
Brain Tumour Support wants to ensure that no one feels alone at any stage of that journey. So if you are able to make a donation, helping us to be here for more people like Lisa, we would be very grateful. Our support services are always free to access and rely on the generosity of fundraising and donations to be maintained. Thank you so much.
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