Meet our Young Champion Lyla
Aged just three when she was diagnosed in 2016 with a pilocytic astrocytoma, she has already been through nine operations and many periods in hospital - you can read her story here.
Lyla and her family are sharing their experience so that more people become aware of possible brain tumour symptoms and to improve understanding of the long term impact that a diagnosis can have.
Paul, Lyla’s dad says “It feels like we’ve been on a rollercoaster ride – every time things seem to be on the up, more bad news is waiting around the corner. It’s been a cruel few years watching Lyla go through all of this, but we just have to think of her and the rest of the kids. Lyla has been the bravest out of all of us, she just keeps knocking doors down and defying everything that gets thrown at her.”
Despite all that she has faced Lyla is determined to keep positive and smiling - and wanting to help others.
With the help of her dad, Lyla and older sister Lilley started a Facebook page to show support to other children facing serious illnesses, and over the past year they have been sending out certificates of bravery to youngsters all over the country, and even internationally. That initiative and her inspiring spirit was recognised with a national WellChild Award which she received recently from the Duke of Sussex.
Young Champion Lyla was also our 'poster girl' on our Stars for Support campaign for Christmas 2018, and she has now been the inspiration for a special song, written and recorded by songwriter Peter Waite and singer Will Jennison, and now released as a single to raise funds for Brain Tumour Support.
‘Forever in My Arms’ is available to download on all major platforms (including Apple Music).