Living with a brain tumour

Brain Tumour Support is a charity offering free support to patients and families affected by a brain tumour

Brain Tumour Support is uniquely dedicated to providing support for anyone affected by a brain tumour from initial diagnosis and for as long as support is needed, and even after bereavement.

Our charity not only supports patients, but also families, carers and loved ones who are dealing day to day with the impact of a brain tumour.

We provide specialist, tailored services through one-to-one and group support, as well as online and telephone support and specialist counselling.

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What to do if you think you might have a brain tumour? 

Some people may have put off seeking medical advice during the coronavirus pandemic and we urge anyone who is worried they have a brain tumour to contact their doctor about symptoms they are experiencing. 

At Brain Tumour Support we want to reassure people that at whatever stage you may be with your diagnosis our dedicated team are here to help you through the challenges. We never want anyone to feel alone and we very much believe that together we are stronger.

Know the signs of a possible brain tumour

If you are worried, then you should talk to your doctor about your symptoms. 

  

The signs and symptoms associated with a brain tumour vary from person to person depending on the size, location and type of tumour. For some this can start gradually over a period of weeks and months, for others symptoms can occur rapidly.  

 

With over 120 different types of brain tumour the list of symptoms cannot be definitive however they can include:

  • Headaches

  • Numbness and tingling in limbs

  • Seizures

  • Problems with memory or cognition

  • Persistent nausea and vomiting

  • Changes in speech, vision or hearing

  • Unexplained changes in personality

Who is most at risk of a brain tumour?

Brain tumours can affect people of any age, although they are more common in older adults.

 

Over 11,000 people each year are diagnosed with a primary brain tumour, with thousands more diagnosed with a secondary brain tumour. This means on average 45 people a day in the UK face a brain tumour diagnosis.

Brain tumours are the biggest cancer killer of children and adults under 40.

The NHS website has further facts about brain tumours -  www.nhs.uk/conditions/brain-tumours

Treatment for brain tumours depends on the type of tumour but may include a course of radiotherapy or chemotherapy or both -  www.nhs.uk/conditions/malignant-brain-tumour

Brain Tumour Support is here to help

Whether you have a high or low grade brain tumour, a glioblastoma, meningioma, glioma or any other type or grade of brain tumour, Brain Tumour Support can help you and your family through the diagnosis, living with the physical, practical and emotional impact of a brain tumour, and beyond if you are facing end of life or bereavement.

Find out more about the support we can offer - www.braintumoursupport.co.uk/support

How you can help

Share your story to support others with brain tumours and help Brain Tumour Support raise awareness of brain tumours - www.braintumoursupport.co.uk/your-story

Brain Tumour Support receives no statutory funding and relies on fundraising, donations and gifts in wills.

Find out about raising vital funds - www.braintumoursupport.co.uk/fundraise

Make a one off or regular donation - www.braintumoursupport.co.uk/donate