How we have helped

Jane's Story - 

You've given me my life back

Please help us to be here for more people like Jane

Support changes lives...

Read about the experiences of people who have been helped by Brain Tumour Support.

If you would like to share your experience of how our support has helped you cope with the impact of a brain tumour please tell us here.

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"I feel I am not alone in my journey"

After being diagnosed with a brain tumour herself, Tina watched her beloved mum die from brain cancer. Read how Tina struggled to come to terms with her diagnosis and how the support she received continues to help her cope with all the challenges that she still faces on a daily basis after complications from brain surgery. 

“I had so many questions and no-one to talk to about them."

There are more than 100,000 people in the UK living with a brain tumour. Suzanne is one of them. Read her story and how our Facebook Forum helped her.

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“It was a bombshell. We just did not know what to do next."

When Mike’s wife Carole was diagnosed with brain cancer, Brain Tumour Support was with him for every step of the way. From the shock of diagnosis, through navigating the often complex healthcare options, to organising palliative care and ultimately through bereavement.

"It's a special thing being able to talk to others."

A brain tumour diagnosis robbed Laura of her job as a sign language interpreter. But life also gave Laura a happy surprise. Read how our support services have helped her through the darkest of times and helped her celebrate the happy times.

"The group is vital."

Lesley was just getting used to life again after treatment for ovarian cancer, when she was diagnosed with a brain tumour. Read about the difference our support has made to Lesley.

"I am just as important as all the others."

For years, Lucy knew there was something wrong, but her symptoms were dismissed by doctors and opticians. Read more about her journey and how our support services have helped her.

"I am so glad I found this group."

Ellie was just 25 when she was diagnosed. She lives remotely and has found our on-line forum a huge help.

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"I don't feel so isolated in my condition any more"

During treatment for a brain tumour, Chris started to retreat from the world and became reclusive. Until he found his local support group.

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"I am so excited to be driving again"

Eleven years after her brain tumour diagnosis and not being able to drive, Linda has her driving licence back. She hopes her story helps others not lose hope.

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"Meeting others made me feel less alone"

After his brain tumour diagnosis, Paul was scared and worried about the future. He says attending one of our support groups has been a big help to him and his family.

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"'Thank you' will never seem enough."

We supported Sammie and her young children during her husband Jamie's illness and after he passed away in November 2018. Read how our counselling service has helped this young family.

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From patient to carer

Glenis helped nurse Nunzio after his cancer diagnosis. Then he noticed that she was muddling her words. Now he cares for Glenis, who has a brain tumour.

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"We feel less alone"

Our support services have helped Jane and Bill feel less alone after Bill was diagnosed with a Grade 4 glioblastoma.

An extraordinary encounter

Meeting Karen at one of our Support Groups helped Lucy make one of the most difficult decisions of her life.

Brain Tumour Support saved my life

After his second surgery, Richard hit an all-time low and even considered taking his own life. It was the support he received from our counsellor and from his local Support Group that kept him going.

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For the first time in a long time, I could just sit there and feel normal

After losing her husband to a rare form of abdominal cancer, Freyja was herself diagnosed with a brain tumour. Her Brain Tumour Support Group is a lifeline to her.

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Brain Tumour Support helped me put my life back together again

It was the persistence of her optician that saved Jane's life and a Support Group and counsellor from Brain Tumour Support that helped her put it back together again.  Then one day she found herself entering a half marathon....

How counselling changed life for Konnie

When Konnie’s world was turned upside down by a brain tumour diagnosis, it was a Brain Tumour Support counsellor that helped her pick up the pieces.

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Andi discovers it's never too late to find support

After having a brain tumour removed in 2014 Andi Nethercoat felt very alone. “So much changed for me after my operation and for three years I thought nobody cared,” said Andi. “There was no real after-care from the hospital; I was low; I’d had to make so many changes in my life and I was depressed.”

But then Andi found his local Support Group run by Brain Tumour Support.

How new friends helped Arvin get his confidence back

A serious car accident changed Arvin’s life forever. But it wasn’t the injuries from the accident that did it - they were minor. It was the MRI scan that he had as a precaution.

“They found six brain tumours,” said Arvin. “Six germinomas.”

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Counselling keeps me strong

Julie was an inspiration to many. After being diagnosed with a brain tumour, she carried on with her many sporting challenges and fundraising. Julie sadly passed away in February 2019 but her spirit, quiet determination and generosity to others will never be forgotten, and here she reveals how a counsellor from Brain Tumour Support helped her along the way. 

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Helping Nicole through bereavement

Our support services are freely available at any point and for as long they are needed, following a brain tumour diagnosis. For loved ones this, sadly, can be a particular need when faced with bereavement. This is Nicole's story.

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How a Support Group changes Jenny's life

​Jenny felt very alone after her brain tumour diagnosis. She looked for people who might be able to help and eventually found out about her local Brain Tumour Support Group. “Going to that first Support Group set off a chain of events that changed my life,” says Jenny.

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How our Facebook Forum is helping Phil

Our Facebook Forum is a safe place for anyone affected by a brain tumour diagnosis to share stories and advice. Here is how it has helped Phil.

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How our Support Group helps Helen find her ‘new normal'

​When Helen was diagnosed with a grade one meningioma, she was in too much shock to read all the information and support leaflets she was given. It was only months later, after the tumour had been removed and she was off work, that she looked through them and found Brain Tumour Support.