Helping Jane and Bill
The staff at Ornua Nutrition Ingredients chose us as their Charity of the Year 2019 because we have supported one of their colleagues, Jane, and her husband Bill following his brain tumour diagnosis. Jane shared their story with us whilst Bill was going through treatment and before, sadly, he passed away.
On Saturday 4th August 2018 our lives changed completely and beyond anything we could have imagined.
Bill and I were driving for a day out when suddenly Bill started to drive on the wrong side of the road. I was in shock and shouted to Bill but he was unaware that he was doing so. Fortunately there was no oncoming traffic and we managed to avoid an accident.
At home Bill complained that his head was hurting and he started to have a seizure. I can remember the paramedics saying what a lovely home we both had as they sat at the end of the sofa doing tests on Bill, who was ready to rip his head off and rapidly feeling very poorly, his blood pressure dropping and could hardly walk.
A CT/MRI scan revealed a shadow over the right lobe – a Grade 4 glioblastoma. The consultant described this as “a beast” and the most serious, aggressive type of cancer there is for brain tumours. This news blew our world apart, we had already booked our dream holiday, going on safari in Africa with friends and lots of other short breaks too. All now in jeopardy and we were uncertain if we could go on any.
Brain Tumour Support contacted me to offer us both support in the form of a forum where others in similar circumstances can discuss and share their problems and experiences. Brain Tumour Support also offered help with any financial issues and offered attendance at monthly meetings and weekend activities if we wanted to get involved. The best thing about Brain Tumour Support’s Members’ Forum is that it is there 24 hours a day to offer support during times where we feel we cannot cope. This made us feel that we were not alone as someone is always there if needed and there have been plenty of times where we have had our own melt-downs.
This type of cancer is dreadful, the impact is horrendous. Bill had bought himself a new VW transporter, his pride and joy, but following his seizure a few days after the purchase he has had to sell it as he could no longer drive. Bill has worked hard all his life with his own plumbing business but can no longer work and we have to live our lives on day-to-day basis.
Jane and Bill
Following surgery and several rounds of radiotherapy and monthly chemotherapy, Bill sadly passed away in December 2019. We continue to support Jane and are very grateful to her for sharing their experience.
Read more about how we help
Brain Tumour Support offers support to brain tumour patients and their families in a variety of ways - support groups, one-to-one, counselling, telephone and on-line support.
For more information call our Support Line on 01454 422701 or email firstname.lastname@example.org