Ellie's story

The news came from out of the blue

Ellie, a teaching assistant at a special needs school near Bath, was just 25 when she was diagnosed with a rare brain tumour.

“I had an accident while at work and was seeing a physiotherapist to try and cure what I thought was a trapped nerve,” said Ellie. “But the physio realised something was not quite right and referred me for an MRI scan.”

The news that she had a brain tumour came out of the blue. “I had had no headaches and no double vision,” said Ellie. “My surgeon was amazed that I had had no symptoms considering the location of the tumour, between my cerebellum and my brain stem.”

After the operation to remove the tumour, the biopsy revealed it was a choroid plexus papilloma– a very rare tumour that does not tend to grow back.

 

“It all happened so quickly and was all such a shock,” said Ellie. “Luckily, my GP pushed for me to have therapy and I have a lovely therapist who helps me deal with getting used to the person I am today.”

Finding support

Ellie has also found our Facebook Forum a huge help. “Everyone on the Forum is so lovely and supportive,” she said. “They listen, they understand and they don’t judge. I’m so glad I found this group.”

 

Today Ellie is working on her recovery, aided by her gorgeous puppy, Maja. “My boyfriend suggested I get a puppy, and it was such a good idea,” says Ellie. “I have to walk her every day and as she grows and her walks get longer, so do mine. She gave me a reason to get out of bed in the mornings. I have constant motion sickness and cannot deal with busy environments, but I can see small improvements every day. I am having neuro-physiotherapy and that helps.”

 

While she is unable to return to work for now, she is still keeping busy. Her main occupation at the moment is planning her wedding! “Billy and I have known each other since we were 16 and I can’t wait to marry him in September!” said Ellie. “I am looking forward to being able to drive again soon because we live remotely. My school has also been brilliant and I am looking forward to returning to work in the future.”

Ellie and her school are supporting our second Sparkle Day - Thursday 7th May

Want to join in? It's simple - get together, sparkle up and donate. Find out more here.

Read more about how we help

Brain Tumour Support offers support to brain tumour patients and their families in a variety of ways - support groups, one-to-one,  counselling, telephone and on-line support.

For more information call our Support Line on 01454 422701 or email support@braintumoursupport.co.uk 

How our Facebook Forum is helping Phil

Counselling keeps me strong

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