It is understandable that anyone with a brain tumour, or caring for someone with a brain tumour, may be feeling more anxious during this difficult time. We are here for you if you need guidance, information or emotional support – our dedicated Support Line 01454 422701(9am-5pm, Monday-Friday), Support Professionals and our Facebook Support Forum are all available to you.
On this page we aim to keep information simple, and to summarize and update guidance and advice particularly relevant to the brain tumour community. However the situation with coronavirus (COVID-19) changes on a daily basis, so for the most comprehensive and up-to-date information, please always check:
and the official public health websites covering all areas of the UK:
England - NHS
Northern Ireland - Public Health Agency
Scotland - NHS Inform
Wales - Public Health Wales
For help and advice about your well-being and mental health during self isolation, please see our dedicated page which is full of tips and advice on how to reduce anxiety and improve your mental health.
What are the current rules?
Covid lockdown restrictions are now easing across the UK, and the shielding requirement previously issued for people considered to be ‘clinically extremely vulnerable’ has been removed.
Since April 12th many more retailers and businesses have been allowed to re-open, however, some basic restrictions remain in place:
Only socialise indoors with people you live with or who are in your support bubble
Up to 6 people or 2 households can meet outside
Work from home if you can and minimise travel
If you have symptoms get a test and stay at home
Social distancing and simple precautions to limit the spread of coronavirus are still very important:
Keep washing your hands regularly
Wear a face covering in enclosed spaces
Stay at least 2 metres apart - or 1 metre with a face covering or other precautions
Is it the same across the UK?
As the plan for the re-opening of non-essential retail and other businesses progresses we advise that you follow the relevant links for the precise up to date guidance covering each area of the UK. This is the best way to find out current Government advice and restrictions which remain in place.
Click on the relevant link for full information from each area.
Am I more at risk if I have a brain tumour?
Under previous guidance, anyone currently having chemotherapy or who had very recently finished treatment was considered 'extremely clinically vulnerable' and required to shield. This link gives details of who is considered to be at higher risk.
Although the shielding requirement has been lifted, we recognise that many people in our community may have particular concerns and questions about whether they still need to take particular precautions in order to stay safe.
The following links for each region around the UK give information and advice which may be helpful if you are worried, as well as any local support that is available.
What is self-isolation?
Self-isolation is when you do not leave your home because you have or might have coronavirus. It is different to shielding. It's a legal requirement to self-isolate if you test positive or are told to self-isolate by NHS Test and Trace. You could be fined if you do not do so.
This means that if required to self isolate you must stay at home and
not go to work, school or public areas
not use public transport or taxis
not have visitors, such as friends and family, in your home
not go out to buy food or collect medicine – order them by phone or online, or ask someone else to drop them off at your home
only take exercise in your own home, or in your garden if you have one
There is information about self-isolation on the NHS website here.
What are coronavirus symptoms?
The most common symptoms of coronavirus are:
a high temperature (37.8 degrees and above)
a new, continuous cough
a loss of, or change to, your sense of smell or taste
If you have coronavirus symptoms you are advised to get a test and stay at home.
If you think you may need one, click the button below for information about when and how to get a test.