Coronavirus (COVID-19)

It is understandable that anyone with a brain tumour, or caring for someone with a brain tumour, may be feeling more anxious during this difficult time. We are here for you if you need guidance, information or emotional support – our dedicated Support Line 01454 422701(9am-5pm, Monday-Friday), Support Professionals and our Facebook Support Forum are all available to you.

On this page we aim to keep information simple, and to summarize and update guidance and advice particularly relevant to the brain tumour community. However the situation with coronavirus (COVID-19) changes on a daily basis, so for the most comprehensive and up-to-date information, please always check: ​

and the official public health websites covering all areas of the UK:

For help and advice about your well-being and mental health during self isolation, please see our dedicated page which is full of tips and advice on how to reduce anxiety and improve your mental health.

What are the current rules?

(updated 19/07/21)

From 19th July Covid restrictions across England are no longer a legal requirement.

Social distancing rules have been removed. Instead everyone can make a “personal choice” based on your age, medical conditions, whether you have been fully vaccinated, and so on. However guidance remains that you may want to reduce your risk by minimising the number, proximity and duration of social contacts, and by meeting outside or ensuring lots of windows are open if you are inside.

Although the legal requirement to wear face masks has been removed completely, in all settings, the government “expects and recommends” that people should continue to wear them, unless exempt, in crowded areas such as public transport. Indeed on many transport networks masks will continue to be a ‘condition of carriage’, and in healthcare settings and many shops and businesses you will still be asked to wear a mask.

So these simple precautions to limit the spread of coronavirus are still valid:

Wash hands

  • Keep washing your hands regularly

Cover face

  • Wear a face covering in enclosed spaces

Make space

  • Stay at least 2 metres apart - or 1 metre with a face covering or other precautions

Is it the same across the UK?

The changes to regulations and guidance does vary in each area of the UK, so we advise you to check the latest guidance applying to the area where you live or are travelling to.


Click on the relevant link for full information from each area.

Am I more at risk if I have a brain tumour?

Under previous guidance, anyone currently having chemotherapy or who had very recently finished treatment was considered 'extremely clinically vulnerable' and required to shield. This link gives details of who is considered to be at higher risk.

Under most recent advice, clinically extremely vulnerable people are urged to be particularly aware about their risk from Covid. Whilst all measures are voluntary, this can include waiting to see someone until 14 days after their second vaccine dose, meeting outside if possible, avoiding crowded spaces, asking friends to take a test before meeting, and avoiding shopping at busy times.

We recognise that many people in our community may have particular concerns and questions about whether they still need to take particular precautions in order to stay safe. 
The following links for each region around the UK give information and advice which may be helpful if you are worried, as well as any local support that is available.

What is self-isolation?

Self-isolation is when you do not leave your home because you have or might have coronavirus. It is different to shielding. You are still required to self-isolate if you test positive or are told to self-isolate by NHS Test and Trace. You could be fined if you do not do so.

This means that if required to self isolate you must stay at home and

  • not go to work, school or public areas

  • not use public transport or taxis

  • not have visitors, such as friends and family, in your home

  • not go out to buy food or collect medicine – order them by phone or online, or ask someone else to drop them off at your home

  • only take exercise in your own home, or in your garden if you have one

There is information about self-isolation on the NHS website here.

What are coronavirus symptoms?

The most common symptoms of coronavirus are:

  • a high temperature (37.8 degrees and above)

  • a new, continuous cough

  • a loss of, or change to, your sense of smell or taste

If you have coronavirus symptoms you are advised to get a test and stay at home

If you think you may need one, click the button below for  information about when and how to get a test.

We are here for you if you need guidance, information or emotional support.

Our dedicated Support Line 01454 422701(9am-5pm, Monday-Friday), Support Professionals and our Facebook Support Forum are all available to you.