Our Patient and Family Support Team is headed by Rosemary Wormington and support for families is offered in various ways as we endeavour to accommodate everyone’s needs.
Brain Tumour Support Workers
Through a partnership with Macmillan Cancer Support we have been able to build an experienced and specialised team with six Brain Tumour Support Workers operating at a local level across the South West and Midlands.
Being regionally based and with their local knowledge they will help ensure patients and families receive direct, structured and hands-on support, and benefit from more accessible face to face support, one of our key services.
BrainTumour Support Groups are open to anyone who has been affected by a brain tumour, whether you are a patient, a family member, a friend or a carer. They offer a safe and relaxed environment where patients, family, carers and friends can share and explore their experiences, make new friendships and exchange information.
You can see more about how groups work and why people find them valuable in our short video -
Each group is very different, but you can expect a warm welcome, tea, coffee and biscuits and have the opportunity to talk about yourself and your experiences. You can join in as little or as much as you feel comfortable with and only talk about things you wish to. There is also the opportunity to talk with the support worker in confidence.
If a support group isn’t for you, we can offer a home visit instead. All pre-arranged visits to your home with a Brain Tumour Support Worker are in confidence.
We can also offer support by telephone, email or text. Brain Tumour Support also facilitates a private Facebook page where you can ask questions, add comments and chat to others.
We offer a specialised, supportive and friendly one-to-one counselling service provided by qualified and highly experienced counsellors. They can be there to support you every step of the way in providing a confidential and secure place to discuss any feelings or issues that you may otherwise find difficult to handle.
Information Days & Family Days
Over the past ten years we have run very popular Patient and Family Weekends and Information Days to bring together all those affected in any way by a brain tumour and increase awareness of the support available. These events provide the opportunity to share experiences and knowledge and there are always professionals on hand who are available to talk to one-to-one.
We also hold annual Family Fun Days where families have the opportunity to enjoy time together over refreshments and for the children to play.
The Brain Tumour Support Services Team can be contacted on 01454 422701 or firstname.lastname@example.org